Working Toward the Future, Feat. GACI Global and Inozyme Pharma

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By Patient Worthy. Discovered by Player FM and our community — copyright is owned by the publisher, not Player FM, and audio is streamed directly from their servers. Hit the Subscribe button to track updates in Player FM, or paste the feed URL into other podcast apps.

On today's episode, we sit down with two of the co-founders of GACI Global, a nonprofit organization centered around families affected by Generalized Arterial Calcification of Infancy. We also speak with the Vice President of Physician and Patient Strategies at Inozyme Pharma, which is pursuing novel therapeutics for the treatment of abnormal mineralization disorders such as GACI. Learn why close cooperation is so important in the development of treatments for rare conditions and why newborn screening is absolutely vital.

Important Links

GACI Global Homepage

GACI Global Worldwide Walk 2022

Inozyme Pharma Homepage

Inozyme Patient Resources

Inozyme Clinical Trial Information

54 episodes