Manage episode 344354522 series 2030599
Rare Disease is ever present and relentless. Sometimes we wish we could push the pause button and live an able bodied life for a little while.
Kendall harvey writes about this struggle in her recent column for Friedreich's Ataxia News. The article is called FA Progression No Longer Has Total Contr Olver My Life and she talks about it with The Dudes.