197 - Looking for the Pause Button on Friedreich's Ataxia

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Manage episode 344354522 series 2030599
By The Dudes, Kyle Bryant, and Sean Baumstark. Discovered by Player FM and our community — copyright is owned by the publisher, not Player FM, and audio is streamed directly from their servers. Hit the Subscribe button to track updates in Player FM, or paste the feed URL into other podcast apps.

Rare Disease is ever present and relentless. Sometimes we wish we could push the pause button and live an able bodied life for a little while.

Kendall harvey writes about this struggle in her recent column for Friedreich's Ataxia News. The article is called FA Progression No Longer Has Total Contr Olver My Life and she talks about it with The Dudes.

Follow Kendall on Instagram as she chases her 9th fundraising title for rideATAXIA Dallas.

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