#370: Start Here


Manage episode 320521436 series 1054126
By Bo Bigelow. Discovered by Player FM and our community — copyright is owned by the publisher, not Player FM, and audio is streamed directly from their servers. Hit the Subscribe button to track updates in Player FM, or paste the feed URL into other podcast apps.

Life with this disease can be pretty overwhelming for families. Especially on that day you first get your diagnosis. If that's you, and this is that day, you've come to the right place.

This episode is a great starting point if you or someone you love has just been diagnosed with Hao-Fountain Syndrome or USP7.

Stronger Every Day is sponsored by The Disorder Channel. It's dedicated to rare diseases and other types of disabilities. Over 100 film and video titles, including a few video versions of this podcast. Available for free right now on Roku and Amazon Fire TV. The Disorder Channel. The most rare stories in the world. https://www.thedisordercollection.com/

If you or someone in your family has just been diagnosed with Hao-Fountain Syndrome or USP7, please join our private groups on Facebook or Discord. Click below and then request to join the private group.

Facebook: https://www.facebook.com/groups/969399453182041/

Discord: discord.gg/7UFUPAFs8K

Check out my YouTube Channel: https://www.youtube.com/bobigelow

Learn more about our life with Tess on my blog: http://www.portlandrootsmedia.com/stronger-every-day-blog-1

396 episodes