#351: Can't Check the Box If You're Rare

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By Bo Bigelow. Discovered by Player FM and our community — copyright is owned by the publisher, not Player FM, and audio is streamed directly from their servers. Hit the Subscribe button to track updates in Player FM, or paste the feed URL into other podcast apps.

Check the box. Yeah, it's on the form there. Hao-Fountain Syndrome. Should be under H. Oh, it isn't there?

A frustrating afternoon of trying to get Tess's blood into our USP7 biobank.

This podcast is sponsored by The Disorder Channel. It’s 100% devoted to programming about rare diseases and other types of disabilities. You can add it for free right now on Roku and Amazon Fire TV. The Disorder Channel—the most rare stories in the world. https://www.thedisordercollection.com/

Check out my YouTube Channel: https://www.youtube.com/bobigelow

Learn more about our life with Tess on my blog: http://www.portlandrootsmedia.com/stronger-every-day-blog-1

396 episodes