The PSC Partners ROADMAP Initiative, Value of the Patient Voice, and more : A Discussion with PSC Partners Medical Science Liaison Joanne Hatchett
Manage episode 304984468 series 2350154
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has it all!
In episode 27, Host Niall McKay talks with PSC Partners Medical Science Liaison and PSC Caregiver Joanne Hatchett. They discuss her role at PSC Partners, the value of PSC Partners efforts to represent the patient voice, the current and future state of PSC research, the aim of the PSC Partners Roadmap Initiative, and more. "Researchers have said that PSC is the black box of liver diseases," says Hatchett. "So little is known, and we need to delve deep, so that we discover the unknown aspects of (this rare disease)."